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March of Dimes - http://www.marchofdimes.com/
Resources for reducing infant morality and birth defects. Offers a health library, research, programs and a donation form. |
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National Birth Defects Prevention Network - http://www.nbdpn.org/NBDPN/
Information about the organization, news, publications and upcoming meetings. Links to state monitoring programs, national as well as international. Instructions for joining the email list. |
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Birth Defect Research for Children - http://www.birthdefects.org
Birth Defect Research for Children (BDRC)provides birth defect information, parent networking, resource referral and news updates on birth defect prevention. BDRC sponsors the National Birth Defect Registry, a project that collects data for birth defect research. |
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How Folate Can Help Prevent Birth Defects - http://www.fda.gov/fdac/features/796_fol.html
Information from the FDA on the importance of folic acid supplementation before pregnancy. |
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Texas Office for Prevention of Developmental Disabilities - http://www.topdd.state.tx.us/
Attempting to minimize the economic and human losses in Texas caused by preventable disabilities. Includes details of task forces, services and resources. |
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Save Babies Through Screening Foundation, Inc. - http://www.savebabies.org/
A non-profit voluntary organization whose mission is to improve the lives of babies by preventing mental retardation and death resulting from disorders detectable through newborn screening. |
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Newborn Screening.Com - http://www.newbornscreening.com/
Regularly updated information and news pertaining to testing and screening. Explanation as to what it is, condition profiles, lab profiles and a discussion forum. |
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The Pregnancy Risk Network - http://www.pregnancyrisknetwork.org
Offers free telephone information about possible effects that medications, alcohol, illness, on children. |
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Research Explores Environmental Causes of Birth Defects - http://healthlink.mcw.edu/article/1031002582.html
Article from the Medical College of Wisconsin explains how in most cases, the precise cause of birth defects is unknown. Describes research being conducted at the College. |
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BDF Newlife - http://www.bdfnewlife.co.uk/
UK charity that provides information, support and nurse advice for all birth defects. |
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Arkansas Center for Birth Defects Research and Prevention - http://arbirthdefectsresearch.uams.edu/
This organization works to reduce the prevalence of birth defects and their economic, social, and psychological impact in Arkansas and the United States. |
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California Fetal Alcohol Spectrum Organization, CalFAS.org - http://calfas.org
Working together to eliminate the disability FASD, Fetal Alcohol Spectrum Disorder by offering information, support and advocates. FASD includes FAS, ARND, ARBD and Static Encephalopathy caused by prenatal alcohol exposure. |
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Kentucky Folic Acid Partnership - http://www.kfap.org
Kentucky's campaign to increase awareness of the B vitamin folic acid for birth defects prevention and to address other perinatal health issues, such as premature births. |
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Anencephaly Awareness - http://www.angelfire.com/mb/jessicasjourney/info.html
Possible causes and information for future prevention of this disorder. |
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Kiss It Make It Better: Vitamin A and Birth Defects - http://www.kissitmakeitbetter.com/pregnancy/vitamin_a_birth_defects/
Includes information on possible risks pre-formed vitamin A for a pregnant woman. |